Wednesday, January 31, 2007
Exhaustion Happens ..
UGH... Here it is almost 12:am and I can't sleep ~ my sons #'s are rollor coastering & new insulin amounts leave me hopeful & worried... Looks like another frustrating night ~ blood check scheduled for 1:30am and I need to stay awake! Dinner was nice AT LAST 143 BUT 2 hours later.. 58 EEK! Grab the apple juice ~ we introduced a new homemade cookie? ~perhaps the carb.counting for tonight was off. Yet not too long ago we saw up to 500 .. WHAT THE HELL !! I don't have much faith in this system lately... Perhaps a pump will help ?? Going to call the diabetes nurse tomorrow & get rationale... I've been down this road before ~ having sick kids & trusting staff+Rx's etc.. LETS FACE IT "it bites"... I was feeling a bit OK a bedtime w/a blood sugar of 133 before snack TIL my son nervously asks me to check on him in the middle of the night ~ its as if he knows a demon lurks... So I wait , stay busy, figure I'll mess around on the computer a lil' bit and feed my fears with knowledge. Remember now we've been told since the time we are young that "knowledge is empowering" HA! and later that "a little knowledge is a dangerous thing" which does lead me to a point !! The Internet is full of info. (SO TO SPEAK) really scary stats. are out there.. groan... and 1:30 can't come quick enough. I asked the nurse on my last visit "my scary question" could he die in his sleep? She looked concerned... yes ~ he could BUT it is very unlikely that he would not wake up from feeling sick should he start dropping for some unknown reason ... SO am I to depend on the feelings of a tiny little guy whom lies exhausted from a big day each night? I would rather him let ME worry over such things at least for a couple more years while he SLEEPS for goodness sakes! He was properly snacked up given his slowN insulin . I don't feel this is enough ! Actually I'm really outraged ~ these kids (babies OMG I would have a heart attack) should have an ALERT like an alarm clock or stop watch that goes off that says hey wake up HIGH blood sugar OR LOW blood sugar..... Where is this device ? or have I been misinformed/confused by the MULTITUDE of poss.dangers ??????? Feel free to comment or enlighten... I'm sure I'll be in a better way tomorrow ;) But, I'll NEVER like this...........................................................................................
Tuesday, January 30, 2007
Start a Best Buddies Program in Your Area
About Best Buddies - Best Buddies International
Our Programs92% of all revenue goes directly to Best Buddies programs for people with intellectual disabilities, while only 8% is spent on administration and fundraising.
When people with disabilities are unable to attain or maintain a job, it is most often due to an absence of social skills rather than an inadequacy to perform the work required. Best Buddies introduces socialization opportunities and job coaching, providing the necessary tools for people with intellectual disabilities to become more independent and, consequently, more included in the community.
• Best Buddies Middle Schools matches students with intellectual disabilities with other middle school students and creates one-to-one friendships between them. In today's middle schools, students with intellectual disabilities enter the same building and walk the same hallways as their peers, but are very often left out of social activities.
•Best Buddies High Schools matches students with intellectual disabilities with other high school students and creates one-to-one friendships between them. By introducing Best Buddies to public and private high schools, we are crossing the invisible line that too often separates those with disabilities from those without.
• Best Buddies Colleges matches people with intellectual disabilities with college students and creates one-to-one friendships between them. In the past, individuals with intellectual disabilities have not had the opportunity to have friends outside of their own, often isolated, environment. By becoming a College Buddy, volunteers offer a Buddy the chance to explore life in a new way.
• e-Buddies® creates respective e-mail friendships between people with and without intellectual disabilities. Using the technology of e-mail, Best Buddies brings additional unconventional opportunities to people with intellectual disabilities through e-Buddies. Visit our web site, http://www.ebuddies.org/, to find out more.
• Best Buddies Citizens pairs people with intellectual disabilities in one-to-one friendships with other individuals in the corporate and civic communities. Without love, support, and friends, our lives would be empty - a life people with intellectual disabilities have been forced to live throughout history. Volunteers are changing this by simply sharing their time with new friends.
• Best Buddies Jobs is a supported employment program. Its goal is to secure competitive, paying jobs for people with intellectual disabilities. The program targets job sites, competitively places individuals and promotes ongoing support and training. This enables people with intellectual disabilities to work as respected individuals alongside others in the community.
Our Programs92% of all revenue goes directly to Best Buddies programs for people with intellectual disabilities, while only 8% is spent on administration and fundraising.
When people with disabilities are unable to attain or maintain a job, it is most often due to an absence of social skills rather than an inadequacy to perform the work required. Best Buddies introduces socialization opportunities and job coaching, providing the necessary tools for people with intellectual disabilities to become more independent and, consequently, more included in the community.
• Best Buddies Middle Schools matches students with intellectual disabilities with other middle school students and creates one-to-one friendships between them. In today's middle schools, students with intellectual disabilities enter the same building and walk the same hallways as their peers, but are very often left out of social activities.
•Best Buddies High Schools matches students with intellectual disabilities with other high school students and creates one-to-one friendships between them. By introducing Best Buddies to public and private high schools, we are crossing the invisible line that too often separates those with disabilities from those without.
• Best Buddies Colleges matches people with intellectual disabilities with college students and creates one-to-one friendships between them. In the past, individuals with intellectual disabilities have not had the opportunity to have friends outside of their own, often isolated, environment. By becoming a College Buddy, volunteers offer a Buddy the chance to explore life in a new way.
• e-Buddies® creates respective e-mail friendships between people with and without intellectual disabilities. Using the technology of e-mail, Best Buddies brings additional unconventional opportunities to people with intellectual disabilities through e-Buddies. Visit our web site, http://www.ebuddies.org/, to find out more.
• Best Buddies Citizens pairs people with intellectual disabilities in one-to-one friendships with other individuals in the corporate and civic communities. Without love, support, and friends, our lives would be empty - a life people with intellectual disabilities have been forced to live throughout history. Volunteers are changing this by simply sharing their time with new friends.
• Best Buddies Jobs is a supported employment program. Its goal is to secure competitive, paying jobs for people with intellectual disabilities. The program targets job sites, competitively places individuals and promotes ongoing support and training. This enables people with intellectual disabilities to work as respected individuals alongside others in the community.
Learn A New Language ..
http://www.youtube.com/watch?v=JnylM1hI2jc ~ Open your mind to an Autistic Woman's point of view ... She has many fascinating things to share with you ! Make sure to watch and listen closely to the entire translation at the end . I thought it was wonderful :)
Monday, January 29, 2007
Thank You !!!
I'd like to take the time to thank all the wonderful on-line/blogging communities whom have taken the time to share their lives,thoughts and words of wisdom with others.. I'm new to this "Bloggin' " ~ and have been nothing less than impressed w/the quality of people that still exsists in this world. Sooo many caring moms & dads breaking down the walls of isolation that comes from having sick children.. You are ALL amazing ~ Keep up the good fight !!!!
Searching For A Cure
Hope is afoot!!! They are reporting that Scientists in Canada may be one step closer to finding a cure for Type 1 diabetes. Research findings reportedly suggest that diabetes may in fact be a disease of the nervous system, not the auto immune system as previously thought.
Reportedly, doctors injected diabetic mice with capsaicin (the active ingredient in hot chili peppers), and a neuropeptide substance, which seemed to reverse the disease.
for full story see:
http://www.allheadlinenews.com/articles/7005868964
Friday, January 26, 2007
Thursday, January 25, 2007
Diabetes & the Law - Youth Zone - American Diabetes Association
Diabetes & the Law - Youth Zone - American Diabetes Association
People with diabetes are sometimes treated unfairly just because they have diabetes. This is called discrimination. Many times, discrimination happens because people just don't know that much about diabetes.
Here are some real-life examples of discrimination that kids with diabetes have faced.
** Not permitted to go on field trips, or not allowed unless a parent comes along
** Being cut from a sport because the coach thinks people with diabetes can't be good athletes
** Not allowed to eat snacks in class or on the bus
** Being punished for being absent from school due to diabetes
** Not allowed to participate in afterschool activities because no one there knows how to care for diabetes
What You Can Do:
Often, people who discriminate don't know it. They may honestly believe that they're doing what's best for you. The solution to this problem is education. Ask a parent or your diabetes educator to discuss your diabetes with the person or organization.
In many cases, people stop discriminating after they learn more about diabetes. If educating people about diabetes doesn't help, you and your parents will have to make some decisions about what to do next. Some things you might do: talk to people higher up in an organization; write letters to people who could help; contact other parents of kids with diabetes or the ADA.
You, your family, and your friends can also help prevent discrimination against people with diabetes. Every time you give someone correct information about diabetes, you're helping to stop discrimination. You and your family may also want to get involved in organizations -- such as the ADA -- that fight for the rights of people with diabetes.
You and your parents could write letters to people in government -- such as the president, your state and national senators and representatives, your governor, and your local school board -- to inform them about diabetes and discrimination. You can probably think of lots of other ways to educate others about diabetes!
People with diabetes are sometimes treated unfairly just because they have diabetes. This is called discrimination. Many times, discrimination happens because people just don't know that much about diabetes.
Here are some real-life examples of discrimination that kids with diabetes have faced.
** Not permitted to go on field trips, or not allowed unless a parent comes along
** Being cut from a sport because the coach thinks people with diabetes can't be good athletes
** Not allowed to eat snacks in class or on the bus
** Being punished for being absent from school due to diabetes
** Not allowed to participate in afterschool activities because no one there knows how to care for diabetes
What You Can Do:
Often, people who discriminate don't know it. They may honestly believe that they're doing what's best for you. The solution to this problem is education. Ask a parent or your diabetes educator to discuss your diabetes with the person or organization.
In many cases, people stop discriminating after they learn more about diabetes. If educating people about diabetes doesn't help, you and your parents will have to make some decisions about what to do next. Some things you might do: talk to people higher up in an organization; write letters to people who could help; contact other parents of kids with diabetes or the ADA.
You, your family, and your friends can also help prevent discrimination against people with diabetes. Every time you give someone correct information about diabetes, you're helping to stop discrimination. You and your family may also want to get involved in organizations -- such as the ADA -- that fight for the rights of people with diabetes.
You and your parents could write letters to people in government -- such as the president, your state and national senators and representatives, your governor, and your local school board -- to inform them about diabetes and discrimination. You can probably think of lots of other ways to educate others about diabetes!
Tuesday, January 23, 2007
Question of the Day ...
Does anyone use the "Omnipod" ? I've been really considering this pump option for my son .. PLEASE comment :D thanks...
A Mom's Promise ~ By Gary Hempleman
A Mom's Promise... She walks down the hallway in silence so deep,Keeping watch over him, as her little one sleeps. With meter in hand, she opens his door,Making sure not to wake him as she crosses the floor. She sits on his bedside and brushes his hair,As he dreams of shooting baskets, without a 'D' care. She holds his hand softly; his fingers so small,As she watches and wonders why 'D' came to call. While she watches him sleeping, so peaceful and warm,The forces inside him fight a constant 'D' storm. Will he ever be free of shots and blood testing? She sits and she wonders as she watches him resting. The beep of the meter breaks the silence of the night,A small drop of blood tells if everything's right. The seconds count down to the final display,I hate this damn meter; I want to throw it away. The number is fine, one down, a lifetime to go,As he turns in his sleep, will he ever know? Why does this ‘D’ happen to someone so small? My son is my hero, but my baby most of all. She turns at his doorway, looking back one more time,It's a nightly routine of the very worst kind. She walks down the hallway and time passes by,As she sits in dark silence and quietly cries. I have to stay strong, and for him I will fight,We’ll battle this ‘D’ with all of our might. I’ll teach him to master and conquer this foe, This 'D' will not stop him, I promised him so. ~ For more Diabetes poetry refer to links . . .
Wednesday, January 17, 2007
Quote of the moment ...
One can never consent to creep when
one feels the impulse to soar.
- Helen Keller
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